[Generalist palliative care in hospitals during the first wave of the COVID-19 pandemic]. / Allgemeine Palliativversorgung im Krankenhaus während der ersten Welle der COVID-19-Pandemie.

BACKGROUND: In the research network of German university palliative care centers (PallPan), as part of Network University Medicine (NUM), recommendations for action were developed in regard to the care provided for seriously ill and dying patients during a pandemic. For this purpose, the experiences and needs of hospital staff working closely with patients outside of specialized palliative care units during the first wave of the COVID-19 pandemic were also examined. MATERIALS AND METHODS: Nationwide online survey of 8,882 physicians, nurses and therapists working in acute inpatient care in the period from December 2020 to January 2021 by means of a newly developed and piloted questionnaire on changes, burdens and cooperation with specialized palliative care. Grouping based on the changes in the number of seriously ill and dying people in the first wave of the pandemic. Due to the exploratory character of the survey, the data were analyzed descriptively. RESULTS: 505/8882 completed questionnaires were evaluated (5.7 %). 167/505 (33.1 %) of the respondents reported a lower quality of care for the critically ill and dying. 464/505 (91.8 %) reported exemptions in place for visiting the dying. The most frequently mentioned stress factor was the perceived loneliness of the seriously ill and dying 437/505 (86.5 %), followed by stricter hygiene rules 409/505 (81 %), increased workload 372/505 (73.3 %) and perceived psychological stress on relatives and survivors 395/505 (78.2 %). 141/505 (27.9 %) of respondents used Tablet PCs to support patient-family communication. 310/505 (61.4 %) involved palliative care professionals in patient care, and 356/505 (70.5 %) of respondents found other palliative care services helpful. CONCLUSION: Experiences and suggestions for improving palliative care in pandemic times are integrated into the PallPan recommendations for action. Family visits should be allowed and supplemented by digital offers. Palliative Care should also be integrated into both pandemic and contingency plans.

Allgemeine Palliativversorgung im Krankenhaus während der ersten Welle der COVID-19-Pandemie Generalist palliative care in hospitals during the first wave of the COVID-19 pandemic

Zusammenfassung Einleitung  Im Forschungsverbund deutscher universitärer Palliativzentren (PallPan) im Netzwerk Universitätsmedizin (NUM) wurden Handlungsempfehlungen für die Versorgung von Schwerkranken und Sterbenden in Pandemiezeiten erarbeitet. Dazu wurden auch die Erfahrungen und Bedürfnisse von patientennah tätigen Mitarbeitenden im Krankenhaus außerhalb von spezialisierten Palliativstationen während der 1. Welle der COVID-19-Pandemie untersucht. Methode  Bundesweite Online-Befragung von 8882 akutstationär tätigen Ärzt*innen, Pflegenden und Therapeut*innen im Zeitraum von Dezember 2020 bis Januar 2021 mittels eines neu entwickelten und pilotierten Fragebogens zu Veränderungen, Belastungen und zur Zusammenarbeit mit der spezialisierten Palliativmedizin. Gruppenbildung anhand der Veränderungen der Anzahl von Schwerkranken und Sterbenden in der ersten Welle der Pandemie. Aufgrund des explorativen Charakters der Studie wurden die Daten deskriptiv analysiert. Ergebnisse  505/8882 vollständig bearbeitete Fragebögen wurden ausgewertet (5,7 %). 167/505 (33,1 %) der Befragten berichteten über eine verschlechterte Versorgungsqualität von Schwerkranken und Sterbenden. 464/505 (91,8 %) berichteten über Ausnahmeregelungen für Besuche von Sterbenden. Der meistgenannte Belastungsfaktor war die wahrgenommene Vereinsamung der Schwerkranken und Sterbenden 437/505 (86,5 %), gefolgt von den verschärften Hygieneregeln 409/505 (81 %), der erhöhten Arbeitsbelastung 372/505 (73,3 %) und der wahrgenommenen psychischen Belastung von Angehörigen und Hinterbliebenen 395/505 (78,2 %). Tablet-PCs zur Unterstützung der Patienten-Angehörigen-Kommunikation wurden von 141/505 (27,9 %) der Befragten genutzt. 310/505 (61,4 %) des in die Patientenversorgung involvierten palliativmedizinischen Fachpersonals und 356/505 (70,5 %) der Befragten hielten weitere palliativmedizinische Angebote für hilfreich. Folgerung  Die Erfahrungen und Vorschläge zur Verbesserung der Palliativversorgung in Pandemiezeiten sind in die PallPan-Handlungsempfehlungen integriert. Angehörigenbesuche sollten ermöglicht und um digitale Angebote erweitert werden. Palliativversorgung sollte in Pandemie- und Krisenpläne integriert werden.

Specialist Palliative Care Consultations in COVID-19 Patients in the ICU-A Retrospective Analysis of Patient Characteristics and Symptoms at a German University Hospital.

COVID-19 patients who may require invasive therapeutic procedures such as extracorporeal membrane oxygenation (ECMO) have high symptom burden and in-hospital mortality. In addition, awake patients on ECMO are new in the intensive care unit (ICU) setting. Inpatient specialist palliative care (sPC) provides support such as symptom control on a physical, psychosocial and spiritual level. The field of sPC in COVID-19 patients is still new and important to investigate. We aim to analyze sPC of COVID-19 patients in the ICU with regard to patient characteristics and symptoms from a palliative care perspective. We conducted a retrospective analysis (03/2020-04/2021) and identified 51 ICU patients receiving sPC. The statistical analysis included descriptive statistics and comparisons of symptoms. The first sPC contact of patients (mean age 69.5 years, 62.7% male) was around 14 days after COVID-19 confirmation, and 43% were treated with ECMO therapy. The baseline symptom burden was high with a focus on weakness (100%), tiredness (98%), dyspnea (96%) and family burden (92%). The symptom intensity significantly decreased during the time period of sPC and COVID-19 treatment (t(99) = 3.119, p = 0.003, d = 0.437). These results help intensivists and sPC clinicians to identify symptoms and the need for sPC in COVID-19 patients. However, studies with prospective and controlled designs need to follow.

Palliative Care e-Learning for Physicians Caring for Critically Ill and Dying Patients during the COVID-19 Pandemic: An Outcome Evaluation with Self-Assessed Knowledge and Attitude.

During the COVID-19 pandemic, the care of critically ill and dying patients in isolation wards, intensive care units (ICUs), and regular wards was severely impaired. In order to support physicians in communicative and palliative care skills, an e-learning tool was developed as part of the joint project "Palliative Care in Pandemic Times" (PallPan). This study investigates the feasibility of this e-learning tool. Secondly, we aim to analyze changes in knowledge and attitude upon completion of the e-learning tool. A 38-item questionnaire-based evaluation study with assessment of global and specific outcomes including ICU and non-ICU physicians was performed. In total, 24 questionnaires were included in the anonymous analysis. Feasibility was confirmed by a very high rate of overall satisfaction (94% approval), with relevance reaching 99% approval. Overall, we detected high gains in knowledge and noticeably lower gains on the attitude plane, with the highest gain in naming reasons for incorporating palliative care. The lowest learning gain on the attitude plane was observed when the participants were confronted with their own mortality. This study shows that e-learning is a feasible tool for gaining knowledge and even changing the attitudes of physicians caring for critically ill and dying patients in a self-assessment evaluation.

Inpatient generalist palliative care during the SARS-CoV-2 pandemic - experiences, challenges and potential solutions from the perspective of health care workers.

BACKGROUND: The SARS-CoV-2 pandemic has presented major challenges to the health system. Despite high acute case numbers, patients without Covid-19 still need to be cared for. Due to the severity of the disease and a possible stressful overall situation, patients with palliative care needs also require comprehensive care during pandemic times. In addition to specialized palliative care facilities, this also takes place in non palliative care wards. In order to ensure this general palliative care also in pandemic times, the experience of the staff should be used. The aim of this paper is to examine challenges and possible solutions for general palliative care inpatients in relation to the care of seriously ill and dying patients and their relatives. METHODS: Qualitative semi-structured focus groups were conducted online for the study. Participants were staff from intensive care or isolation wards or from units where vulnerable patients (e.g. with cognitive impairment) are cared for. The focus groups were recorded and subsequently transcribed. The data material was analysed with the content structuring content analysis according to Kuckartz. RESULTS: Five focus groups with four to eight health care professionals with various backgrounds were conducted. Fifteen main categories with two to eight subcategories were identified. Based on frequency and the importance expressed by the focus groups, six categories were extracted as central aspects: visiting regulations, communication with relatives, hygiene measures, cooperation, determination of the patients will and the possibility to say good bye. CONCLUSION: The pandemic situation produced several challenges needing specific solutions in order to manage the care of seriously ill and dying patients. Especially visiting needs regulation to prevent social isolation and dying alone. Finding alternative communication ways as well as interprofessional and interdisciplinary cooperation is a precondition for individualised care of seriously ill and dying patients and their relatives. Measures preventing infections should be transparently communicated in hospitals.